SD Dojavi
OSMRTNICE
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Slučaj braće iz Daruvara, Tea i Leona Petra, oboljelih od rijetkog i nasljednog poremećaja koji sprječava tijelo da pretvori određene masti u energiju, ujednio je cijelu Hrvatsku.

Kako je prije nekoliko dana pisala Slobodna Dalmacija, kod 12-godišnjega Tea je bilo sve u redu dok sa šest mjeseci nije dobio bronhitis. Otac Dino i majka Sanja odvezli su ga u pakračku bolnicu gdje je bio sedam dana. Osmi dan su ga morali oživljavati, pa su ga prebacili u Zagreb, u KBC Rebro.

Tamo su nakon niza pretraga otkrili da ima rijetku nasljednu bolest: rođen je bez dugačkog lanca masnih kiselina, što oštećuje cijeli organizam. Lijek se vjerojatno nikada neće ni pokušati napraviti jer je broj osoba s ovom bolesti izrazito malen i nema interesa farmaceutskih divova.

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Teo i Leon

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Saznali su da će svaki dan morati paziti koliko točno Teo smije unijeti proteina, kilokalorija, ugljikohidrata jer svaki višak ugljikohidrata u organizmu se pretvara u masnoću koju njegov organizam ne može preraditi, a ta masnoća se potom hvata na mišiće, na oči, srce i mozak i polako ih uništava... Zbog toga svaka tri mjeseca Teo mora ići na kontrolu kako bi se vidjelo koliko rapidno bolest napada organizam.

Teo se s osam godina, preko snimanja roditeljskim mobitelima, zainteresirao za fotografiju, a poslije se fotografijom počeo ozbiljnije baviti, upisao se u fotoklub i poželio bolji fotoaparat. Uspjeli su nekako skupiti potrebni novac, ali pojavio se problem s fotoopremom. Zato su roditelji pokrenuli akciju da se za to prikupi potrebni novac, kako je pisao Moj portal, a prenijela Slobodna Dalmacija.

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Mladi perspektivni fotograf na riječkome karnevalu, s fotoaparatom dakako

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I ta akcija nije ostala bez odjeka, dapače postigla je lijepe učinke. Naime otkako je molba za pomoć Teu upućena 28. veljače, na Međunarodni dan rijetkih bolesti, javili su se mnogi dobri ljudi u novcu i fotoopremi.

Najprije je jedan Daruvarčanin, koji je htio ostati anoniman, donirao Teu tronožni stativ za fotoaparat, kojim je Teo u Pakracu snimao utakmicu juniora pakračkog Hajduka i HNK Daruvar. Budući da je Teu bio potreban objektiv marke Sigma, jedan čovjek, koji je također želi ostati anoniman, odlučio mu ga je kupiti. Roditelje je kontaktiralo hrvatsko predstavništvo poznatog svjetskog proizvođača fotoparata i zatražilo popis potrebne opreme da je mogu donirati ili dati uz veliki popust. Pomoć su ponudili i jefan fotoklub i jedna hrvatska fotoagencija, a jedan nogometni klub poklonio mu je svoj dres.

Roditelji su izračunali da bi Teu za nabavu skupe fotoopreme trebalo nekih 60.000 kuna, a donacijama je već prikupljeno gotovo pola tog iznosa, piše Moj portal.

Broj žiroračuna na koji se može uplatiti donacija može se pronaći ovdje.

I do sada su dobri ljudi Teu i njegovoj obitelji pokazivali da ima puno onih koji suosjećaju s njima i od srca žele da imaju bolji i ljepši život. Tako bi moglo biti i ovaj put.

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Bolnički Teovi dani

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Teo s mlađim bratom Leonom, koji također boluje od rijetke bolesti

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Teo s mlađim bratom Leonom, koji također boluje od rijetke bolesti

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Teo i Leon

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Bolnički Teovi dani

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Mladi perspektivni fotograf na riječkome karnevalu, s fotoaparatom dakako

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Slučaj braće iz Daruvara, Tea i Leona Petra, oboljelih od rijetkog i nasljednog poremećaja koji sprječava tijelo da pretvori određene masti u energiju, ujednio je cijelu Hrvatsku.

Kako je prije nekoliko dana pisala Slobodna Dalmacija, kod 12-godišnjega Tea je bilo sve u redu dok sa šest mjeseci nije dobio bronhitis. Otac Dino i majka Sanja odvezli su ga u pakračku bolnicu gdje je bio sedam dana. Osmi dan su ga morali oživljavati, pa su ga prebacili u Zagreb, u KBC Rebro.

Tamo su nakon niza pretraga otkrili da ima rijetku nasljednu bolest: rođen je bez dugačkog lanca masnih kiselina, što oštećuje cijeli organizam. Lijek se vjerojatno nikada neće ni pokušati napraviti jer je broj osoba s ovom bolesti izrazito malen i nema interesa farmaceutskih divova.

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Teo i Leon

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Saznali su da će svaki dan morati paziti koliko točno Teo smije unijeti proteina, kilokalorija, ugljikohidrata jer svaki višak ugljikohidrata u organizmu se pretvara u masnoću koju njegov organizam ne može preraditi, a ta masnoća se potom hvata na mišiće, na oči, srce i mozak i polako ih uništava... Zbog toga svaka tri mjeseca Teo mora ići na kontrolu kako bi se vidjelo koliko rapidno bolest napada organizam.

Teo se s osam godina, preko snimanja roditeljskim mobitelima, zainteresirao za fotografiju, a poslije se fotografijom počeo ozbiljnije baviti, upisao se u fotoklub i poželio bolji fotoaparat. Uspjeli su nekako skupiti potrebni novac, ali pojavio se problem s fotoopremom. Zato su roditelji pokrenuli akciju da se za to prikupi potrebni novac, kako je pisao Moj portal, a prenijela Slobodna Dalmacija.

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image

Mladi perspektivni fotograf na riječkome karnevalu, s fotoaparatom dakako

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I ta akcija nije ostala bez odjeka, dapače postigla je lijepe učinke. Naime otkako je molba za pomoć Teu upućena 28. veljače, na Međunarodni dan rijetkih bolesti, javili su se mnogi dobri ljudi u novcu i fotoopremi.

Najprije je jedan Daruvarčanin, koji je htio ostati anoniman, donirao Teu tronožni stativ za fotoaparat, kojim je Teo u Pakracu snimao utakmicu juniora pakračkog Hajduka i HNK Daruvar. Budući da je Teu bio potreban objektiv marke Sigma, jedan čovjek, koji je također želi ostati anoniman, odlučio mu ga je kupiti. Roditelje je kontaktiralo hrvatsko predstavništvo poznatog svjetskog proizvođača fotoparata i zatražilo popis potrebne opreme da je mogu donirati ili dati uz veliki popust. Pomoć su ponudili i jefan fotoklub i jedna hrvatska fotoagencija, a jedan nogometni klub poklonio mu je svoj dres.

Roditelji su izračunali da bi Teu za nabavu skupe fotoopreme trebalo nekih 60.000 kuna, a donacijama je već prikupljeno gotovo pola tog iznosa, piše Moj portal.

Broj žiroračuna na koji se može uplatiti donacija može se pronaći ovdje.

I do sada su dobri ljudi Teu i njegovoj obitelji pokazivali da ima puno onih koji suosjećaju s njima i od srca žele da imaju bolji i ljepši život. Tako bi moglo biti i ovaj put.

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image

Bolnički Teovi dani

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Teo s mlađim bratom Leonom, koji također boluje od rijetke bolesti
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Teo i Leon
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Bolnički Teovi dani
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Mladi perspektivni fotograf na riječkome karnevalu, s fotoaparatom dakako
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Dječak Teo, obolio od rijetke i teške bolesti, na pragu je ostvarenja sna, dobri ljudi daruju foto opremu i novac

Piše NOVOSTI SD
8. ožujka 2023. - 20:50
&lt;p&gt;Teo s mlađim bratom Leonom, koji također boluje od rijetke bolesti&lt;/p&gt;
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Teo s mlađim bratom Leonom, koji također boluje od rijetke bolestiPrivatni album

Slučaj braće iz Daruvara, Tea i Leona Petra, oboljelih od rijetkog i nasljednog poremećaja koji sprječava tijelo da pretvori određene masti u energiju, ujednio je cijelu Hrvatsku.

Kako je prije nekoliko dana pisala Slobodna Dalmacija, kod 12-godišnjega Tea je bilo sve u redu dok sa šest mjeseci nije dobio bronhitis. Otac Dino i majka Sanja odvezli su ga u pakračku bolnicu gdje je bio sedam dana. Osmi dan su ga morali oživljavati, pa su ga prebacili u Zagreb, u KBC Rebro.

Tamo su nakon niza pretraga otkrili da ima rijetku nasljednu bolest: rođen je bez dugačkog lanca masnih kiselina, što oštećuje cijeli organizam. Lijek se vjerojatno nikada neće ni pokušati napraviti jer je broj osoba s ovom bolesti izrazito malen i nema interesa farmaceutskih divova.

...
#TEO PARTL#RIJETKA BOLEST#DARUVAR#LEO PARTL#FOTOGRAF#DONACIJA OPREME
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