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[title] => Oni su najneobičnija klapa na svijetu, klapa pjevača - bez glasnica: ‘Popadali smo od smija kad smo prvi put zapivali!‘
[alias] => oni-su-najneobicnija-klapa-na-svijetu-klapa-pjevaca-bez-glasnica-popadali-smo-od-smija-kad-smo-prvi-put-zapivali
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Glasnice su parne tvorbe, građene od sluznice grkljana, smještene postranično, na stijenkama. Možete ih zvati i glasiljkama. Ako vam je latinski blizak onda i plicae vocales. Kako bilo, bez njih nam glasa nema, kada ih podražimo strujom izdahnuta zraka iz naših usana izlaze nježne rečenice, možda i ljutito urlanje, pjesma, smijeh...
Tako, eto, nastaje glas. Nekada, nevoljom, izgubimo glas... Sjetite se kada vam, primjerice, bakterije napadnu grlo, pa promuknete ili potpuno ostanete bez zvuka. Teško, ha?
Među nama su oni koji glasnica uopće nemaju. Njihove su bolesti bile teške, kirurzi su morali ukloniti ako ne samo glasnice, onda i cijeli grkljan i dio neuromuskularnih struktura vrata. Oni su laringektomirani. Ne dišu više kroz nos, nego kroz otvor na donjem dijelu vrata, dišu kroz traheostomu.
Osobe koje se podvrgnu laringektomiji i dalje mogu imati dobru kvalitetu života, ali moraju naučiti na nove načine disanja, govora i gutanja. I moraju se pomiriti s tim da više nemaju osjet njuha. Ni osjet okusa. I da neće više nikada zapjevati...
Ili ipak – ne?!
– Klapa nam se zove "Orilo, grmilo" – tako će Dražan Maleš kao da se radi o najnormalnijoj stvari na svijetu.
Razgovaramo s njim, tajnikom, u biti alfom i omegom, i s Mirom Kasalom, potpredsjednikom Udruge laringektomiranih Split. Razgovaramo da, jer i Miro i Dražan trebaju samo pritisnuti botun na svojoj govornoj protezi, ona im je ugrađena u novi jednjak nakon operacije.
---
---
Bilo bi dobro da imaju onu moderniju, koja se dade regulirati "daljinskim", pa ne bi trebali pritiskati spomenuti botun svaki put kad požele nešto reći. Ali – novci.
– Mi smo ti najskuplji pacijenti – veli nam Miro.
I stavljamo na papir, crno na bijelo, sve brojke, 400 eura za govorni aparat, koji se mijenja barem četiri puta godišnje, držač kaseta je oko 10 eura, kao i čepovi, koji se mijenjaju svakoga dana, naljepnice izdrže dva dana, četkica za čišćenje vam je nužna, baš kao i 150 eura vrijedna plastika koja se ulaže u govorni aparat, 20 eura "težak" držač za automatski govorni ventil... Pritom ne računamo potrebu za inhalatorom, respiratorom, vlažnim maramicama (potroše ih more, op.a.).
– Upropastit ćete nam zdravstvo – zezamo, jer kod Mira i Dražana nema ni sekunde potrošene na samožaljenje. Samo smijeh. Samo radost. I pjesma.
Pa vam integralno prenosimo, malo jednog, malo drugog, dok nam u dvoglasju pripovijedaju kako je nastala klapa "Orilo, gorilo".
– Znaš šta su mi rekli kad san predložija da osnujemo klapu?
– Rekli smo ti da si lud! Pitali te – šta ti je?
– Ali imali smo sjajne motivatore među nama, nažalost sad pokojne, Martina Bagatina i Ivicu Ćuka!
---
---
– I onda smo zapivali!
– Je, pivali smo "Sedam gora, sedam mora"...
– Je l‘ se sićaš?!
– Nego! Popadali smo od smija!
– Rugamo se sami sebi, da si to vidila, čisto ludilo...
– Moraš imat osjećaj "ja san ka i ti", jer ako ti možeš bit Grašo, mogu i ja!
I mogu. Zapjevaju. Traži to dosta vježbe, ali se ne daju, jer...
– Život je borba! Ali borba od života do smrti, a ne samo do – bolesti!
---
---
Tako nam vele, čvrsti i dodaju svim svojim supatnicima koji se još uvijek nisu odlučili obratiti se Udruzi za pomoć, za savjet, za druženje:
– Prihvati život! Kirurg te operira, onkolog te zrači, ali ti si najvažniji, ti moraš odradit svoje! Nema predaje!
Daleko od toga da oni nisu svjesni svojeg hendikepa. Naravno da jesu. Teško je boriti se, to je neupitno, valja ponovno učiti govoriti, ponovno učiti jesti, ponovno učiti disati... Ali društvo liječi. Dodali bi Dražan i Miro: Ljudi moji! Pa dodajemo i mi:
– Društvo liječi, ljudi moji!
Premda liječnici operiranima daju nekih 50 posto šanse, oni te brojke podižu prema "stotici", jer u splitskoj bolnici godišnje u prosjeku 60 do 70 osoba prođe isto što su prošli oni. Sve više je mladih. Sve više je žena. I oni se ustručavaju.
– Začahure se u svojoj bolesti, zatvore se u svoje domove, zatvore se u sebe i odustaju. Jednom smo uspjeli dovesti među nas ženu koja punih 12 godina nije progovorila. Kada smo je nagovorili da se koristi umjetnim glasnicama i kad je progovorila, ljudi moji. To su bile suze! Ali, radosnice – vele nam.
---
---
Oni su na raspolaganju, napominju, 24 sata dnevno, sedam dana u tjednu. Za razliku od, recimo i to, prava na fizioterapiju koje – nemaju.
– Molim?!
– Da, nemamo pravo! A tribalo bi nam! Nama je vrat stalno u spazmu, vratni kralješci su oslabljeni, pa izgubili smo po 70 posto vrata, neki i više... Tribale bi nam masaže, terapije – i nemojte misliti da se žale, nisu, to nam spominju onako usput, ali mi držimo kako je važno to zabilježiti, baš kao i ovo:
– Mi ti ne smijemo ulaziti u more! Niti u bazen! – tako će ljudi s mora.
– Postoji poseban uređaj za plivanje u bazenu, košta 400 eura, a za njega moraš imati i licencu za plivače – otkrivaju bivši plivači, oni koji su djetinjstvo i pola mladosti barem proveli u moru.
Ni to ne pokriva HZZO, nismo ni mislili, ali možda možemo mi. Onako. Euro po euro. O tome sanjamo, eto, ako među vama ima onih s dobrim prijedlogom i još boljim rješenjem – javite se slobodno. Udruga laringektomiranih Split dobrom voljom veterana Četvrte gardijske brigade gostuje u njihovim prostorima, u Ulici Ruđera Boškovića, tamo ih uvijek možete naći.
A ako vas je volja pjevati, javite se također, audicija je, zeza nas dvojac otkačenih, u tijeku.
---
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page_title=Oni su najneobičnija klapa na svijetu, klapa pjevača - bez glasnica: 'Popadali smo od smija kad smo prvi put zapivali!'
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Među njima su oni koji uopće nemaju glasnica. Ali pjevaju!
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Saša Burić/Cropix
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U starom sastavu, dok su Martin Bagatin i Ivica Ćuk još bili među njima
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Glasnice su parne tvorbe, građene od sluznice grkljana, smještene postranično, na stijenkama. Možete ih zvati i glasiljkama. Ako vam je latinski blizak onda i plicae vocales. Kako bilo, bez njih nam glasa nema, kada ih podražimo strujom izdahnuta zraka iz naših usana izlaze nježne rečenice, možda i ljutito urlanje, pjesma, smijeh...
Tako, eto, nastaje glas. Nekada, nevoljom, izgubimo glas... Sjetite se kada vam, primjerice, bakterije napadnu grlo, pa promuknete ili potpuno ostanete bez zvuka. Teško, ha?
Među nama su oni koji glasnica uopće nemaju. Njihove su bolesti bile teške, kirurzi su morali ukloniti ako ne samo glasnice, onda i cijeli grkljan i dio neuromuskularnih struktura vrata. Oni su laringektomirani. Ne dišu više kroz nos, nego kroz otvor na donjem dijelu vrata, dišu kroz traheostomu.
Osobe koje se podvrgnu laringektomiji i dalje mogu imati dobru kvalitetu života, ali moraju naučiti na nove načine disanja, govora i gutanja. I moraju se pomiriti s tim da više nemaju osjet njuha. Ni osjet okusa. I da neće više nikada zapjevati...
Ili ipak – ne?!
– Klapa nam se zove "Orilo, grmilo" – tako će Dražan Maleš kao da se radi o najnormalnijoj stvari na svijetu.
Razgovaramo s njim, tajnikom, u biti alfom i omegom, i s Mirom Kasalom, potpredsjednikom Udruge laringektomiranih Split. Razgovaramo da, jer i Miro i Dražan trebaju samo pritisnuti botun na svojoj govornoj protezi, ona im je ugrađena u novi jednjak nakon operacije.
---
---
Bilo bi dobro da imaju onu moderniju, koja se dade regulirati "daljinskim", pa ne bi trebali pritiskati spomenuti botun svaki put kad požele nešto reći. Ali – novci.
– Mi smo ti najskuplji pacijenti – veli nam Miro.
I stavljamo na papir, crno na bijelo, sve brojke, 400 eura za govorni aparat, koji se mijenja barem četiri puta godišnje, držač kaseta je oko 10 eura, kao i čepovi, koji se mijenjaju svakoga dana, naljepnice izdrže dva dana, četkica za čišćenje vam je nužna, baš kao i 150 eura vrijedna plastika koja se ulaže u govorni aparat, 20 eura "težak" držač za automatski govorni ventil... Pritom ne računamo potrebu za inhalatorom, respiratorom, vlažnim maramicama (potroše ih more, op.a.).
– Upropastit ćete nam zdravstvo – zezamo, jer kod Mira i Dražana nema ni sekunde potrošene na samožaljenje. Samo smijeh. Samo radost. I pjesma.
Pa vam integralno prenosimo, malo jednog, malo drugog, dok nam u dvoglasju pripovijedaju kako je nastala klapa "Orilo, gorilo".
– Znaš šta su mi rekli kad san predložija da osnujemo klapu?
– Rekli smo ti da si lud! Pitali te – šta ti je?
– Ali imali smo sjajne motivatore među nama, nažalost sad pokojne, Martina Bagatina i Ivicu Ćuka!
---
---
– I onda smo zapivali!
– Je, pivali smo "Sedam gora, sedam mora"...
– Je l‘ se sićaš?!
– Nego! Popadali smo od smija!
– Rugamo se sami sebi, da si to vidila, čisto ludilo...
– Moraš imat osjećaj "ja san ka i ti", jer ako ti možeš bit Grašo, mogu i ja!
I mogu. Zapjevaju. Traži to dosta vježbe, ali se ne daju, jer...
– Život je borba! Ali borba od života do smrti, a ne samo do – bolesti!
---
---
Tako nam vele, čvrsti i dodaju svim svojim supatnicima koji se još uvijek nisu odlučili obratiti se Udruzi za pomoć, za savjet, za druženje:
– Prihvati život! Kirurg te operira, onkolog te zrači, ali ti si najvažniji, ti moraš odradit svoje! Nema predaje!
Daleko od toga da oni nisu svjesni svojeg hendikepa. Naravno da jesu. Teško je boriti se, to je neupitno, valja ponovno učiti govoriti, ponovno učiti jesti, ponovno učiti disati... Ali društvo liječi. Dodali bi Dražan i Miro: Ljudi moji! Pa dodajemo i mi:
– Društvo liječi, ljudi moji!
Premda liječnici operiranima daju nekih 50 posto šanse, oni te brojke podižu prema "stotici", jer u splitskoj bolnici godišnje u prosjeku 60 do 70 osoba prođe isto što su prošli oni. Sve više je mladih. Sve više je žena. I oni se ustručavaju.
– Začahure se u svojoj bolesti, zatvore se u svoje domove, zatvore se u sebe i odustaju. Jednom smo uspjeli dovesti među nas ženu koja punih 12 godina nije progovorila. Kada smo je nagovorili da se koristi umjetnim glasnicama i kad je progovorila, ljudi moji. To su bile suze! Ali, radosnice – vele nam.
---
---
Oni su na raspolaganju, napominju, 24 sata dnevno, sedam dana u tjednu. Za razliku od, recimo i to, prava na fizioterapiju koje – nemaju.
– Molim?!
– Da, nemamo pravo! A tribalo bi nam! Nama je vrat stalno u spazmu, vratni kralješci su oslabljeni, pa izgubili smo po 70 posto vrata, neki i više... Tribale bi nam masaže, terapije – i nemojte misliti da se žale, nisu, to nam spominju onako usput, ali mi držimo kako je važno to zabilježiti, baš kao i ovo:
– Mi ti ne smijemo ulaziti u more! Niti u bazen! – tako će ljudi s mora.
– Postoji poseban uređaj za plivanje u bazenu, košta 400 eura, a za njega moraš imati i licencu za plivače – otkrivaju bivši plivači, oni koji su djetinjstvo i pola mladosti barem proveli u moru.
Ni to ne pokriva HZZO, nismo ni mislili, ali možda možemo mi. Onako. Euro po euro. O tome sanjamo, eto, ako među vama ima onih s dobrim prijedlogom i još boljim rješenjem – javite se slobodno. Udruga laringektomiranih Split dobrom voljom veterana Četvrte gardijske brigade gostuje u njihovim prostorima, u Ulici Ruđera Boškovića, tamo ih uvijek možete naći.
A ako vas je volja pjevati, javite se također, audicija je, zeza nas dvojac otkačenih, u tijeku.
---
---
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[12] => stdClass Object
(
[id] => 71
[name] => Horizontal crop of the main photo
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 13
[alias] => horizontal_crop_of_the_main_photo
)
[13] => stdClass Object
(
[id] => 73
[name] => No-index
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 15
[alias] => no_index
)
[14] => stdClass Object
(
[id] => 74
[name] => No-cache
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 16
[alias] => no_cache
)
[15] => stdClass Object
(
[id] => 77
[name] => Don't show on the front page
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 17
[alias] => dont_show_on_the_front_page
)
[16] => stdClass Object
(
[id] => 78
[name] => Related on bottom
[value] => ON
[type] => radio
[group] => 9
[published] => 1
[ordering] => 18
[alias] => related_on_bottom
)
[17] => stdClass Object
(
[id] => 79
[name] => Live button
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 19
[alias] => live_button
)
[26] => stdClass Object
(
[id] => 87
[name] => Instant articles
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 28
[alias] => instant_articles
)
[27] => stdClass Object
(
[id] => 91
[name] => S preporučuje
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 29
[alias] => s_preporucuje
)
[28] => stdClass Object
(
[id] => 92
[name] => S voli
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 30
[alias] => s_voli
)
[29] => stdClass Object
(
[id] => 93
[name] => Layout with three photos
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 31
[alias] => layout_with_three_photos
)
[30] => stdClass Object
(
[id] => 94
[name] => Gallery in the article
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 32
[alias] => gallery_in_the_article
)
[31] => stdClass Object
(
[id] => 95
[name] => Required views
[value] => 0
[type] => textfield
[group] => 9
[published] => 1
[ordering] => 33
[alias] => required_views
)
[32] => stdClass Object
(
[id] => 96
[name] => FullHD image
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 34
[alias] => fullhd_image
)
[33] => stdClass Object
(
[id] => 97
[name] => City Select
[value] => (0)
[type] => select
[group] => 9
[published] => 1
[ordering] => 35
[alias] => CitySelect
)
[34] => stdClass Object
(
[id] => 98
[name] => Paid Article
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 36
[alias] => paid_article
)
[35] => stdClass Object
(
[id] => 99
[name] => SD na licu mjesta
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 37
[alias] => SD_na_licu_mjesta
)
[36] => stdClass Object
(
[id] => 100
[name] => Important article
[value] => OFF
[type] => radio
[group] => 9
[published] => 1
[ordering] => 38
[alias] => Important_article
)
)
18. svibanj 2024 20:25
